I'm back! (added baby pic)

catjac1975

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You must be so grateful for modern medicine! So happy for her good doctors!
journey11 said:
She was born with critical pulmonary valve stenosis. It's not something they would see on a routine ultrasound, so we were very surprised because otherwise she looked so healthy. There is a neat little bypass babies have called the patent ductus arteriosis which gives them a 12-72 hour window in which the blood is rerouted (it's used in utero and closes off on its own after that). For us, it was just enough time for the doctor's to find the problem and stabilize her until they could fix it a couple of days later. Thank God! They ran a catheter up through her leg and popped the valve open with a balloon thingy. They say a lot of SIDS cases are probably caused by heart problems like this that were not detected. She has to have a valve replacement at age 15, but other than that, she is supposed to have an otherwise normal life, can play sports, etc.

Jared, are you an EMT?
 

journey11

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digitS' said:
You just do the best that you can, Journey . . .

. . . and LOOK at those fingers!

I'm a fingers man myself.

digitS'
I've been making peace with that lately, really. Can only do so much! Had to let a lot of things go, which is hard for me because I am a bit of a perfectionist. :p

Steve, she's got those long, artistic fingers like her sister and I. Unfortunately, we also have weird, long toes. LOL

Thanks, Ducks! I am so glad to be back. Nice to have an outlet again. :cool:

Catjac, that is for sure! I don't suppose a few decades ago she would have made it. Amazing what they can do with a little heart no bigger than a walnut.
 

Jared77

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Yes its a big deal, but you know what the score is and what has to be done to address it. There are a LOT of things that could have happened or she could have to cope with that are much more devistating. I've been there and have treated some of those kids. Its all about perspective.

When my daughter was born my wife went through a very long pregnancy. My daughter came out nearly limp. She didn't cry, she barely moved. My wife's an RN and with our backgrounds we were scared out of our minds. Her initial APGAR scores were awful. Turns out she was just exhausted from the delivery. But it took a few hours before we knew anything. My wife got to hold her then she was whipped away from us too. Trust me I know how you feel.

Focus on the positive aspects. She's already beautiful, she's going to be someone very special. Before you know it what she's already been through will just be a fact like "she likes horses", or "her favorite color is purple" or "she's ___ years old".

Your already sounding better about the situation.
 

catjac1975

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By the time she is 15 there will probably be some quick easy genius treatment! Actually she already had a genius treatment that was a huge dangerous surgery 30 years ago!
 

journey11

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Her cardiologist at Nationwide Children's Hospital in Columbus, OH told us that they are currently working on a way to do the valve replacement by catheter instead of open-heart. I guess it's being done tentatively in adults right now and they are still working on it. Maybe they'll have all the bugs worked out 15 years from now. It's amazing to me the things they can do.

I really didn't word my last post very well. I only get a couple minutes before *someone* is over my shoulder begging for a popsicle or needs helping getting her shirt turned right-side-out, so I lose my train of thought pretty easily. :lol: I do feel so blessed that Savannah's heart problem was so easily treatable and has such an excellent prognosis. Even if things had been much worse, there would have been grace for that too. My sister lost her second baby to anencephaly last October. He would have been 5 months older than Savannah and they would have had so much fun growing up together had things been different. I wouldn't dare complain in light of what my sister has been through, especially given the strength and character she exhibited throughout it all.

I have to wonder maybe the good Lord knew I needed another lesson in patience with this second child. My firstborn spent a week in the hospital to be treated for an infection and I was so upset about it at the time. I never imagined lightning would strike twice and this one spent her first two and a half weeks in the hospital. I think most moms probably have an idealization in their mind about what those first dreamy days with a new baby will be like. I tried so hard to do everything right and be as healthy as possible this second time around. I really thought I'd get to take this one straight home with me. I think I struggled the most with that first month at home, sleeping on the couch, listening to the hiss and purr of the oxygen concentrator and the unnerving alarms that would go off all night when her pulse-ox probe got kicked off (never had any real alarm).

Mostly the things I had to let go of were my own goals and expectations for myself. I did drastically scale back my projects here at home (bees, goats, chickens, garden, landscaping), but even the little things I thought I could get around to have gone unattended. I seemed to get so much more done when Ava was a baby? I've definitely had to lower my standards of housekeeping. And so much for my big plans to get out of debt...ha. We saved about $80 a month cutting the internet and stuff for the past year. We did pay off two credit cards, made the last couple of installments on our car and flipped that money onto the cards. It was really fortunate that we made that effort when we did because it freed us up to pay on medical bills now with no strain. We hit the catastrophic cap on our insurance. I told my husband if he has any moles he wants removed, now is the time to do it. :p It's all worked out though. And it's been good for me to admit that I am not superwoman.

And you know what, my bees are so smart, they know just what to do to get along fine just fine without any help from me. If they're still there next spring (and I can fit back into my beesuit) I'll try my hand at beekeeping again. Right now, I am just content to be a "bee-have'r", if anyone could ever really possess something as wild and free as a honeybee anyway. ;)
:bee
 

ninnymary

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Journey, well said. Seems like you have matured and learned alot. I think by next spring you will be in an easier place to do alittle gardening and keep up with those bees. Having two little ones will keep anyone's hands full.

Mary
 

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