Need Support

[lesa]

Well, of course, I hope you are wrong... keep on searching and don't be satisfied with an answer from any doc, that doesn't make sense to you! Fingers crossed that you will hear good new soon...Let us know what you find out. Sending you all good things in hopes and prayers.

 

[ninnymary]

Vfem, I have been wondering how you have been doing but didn't want to ask. I thought since you were doing alittle posting that you were better. I have found that you have to be your own advocate with doctors. It seems you have to always push with them. I think knowing what you have is better than not knowing. I hope you get fast results. Hoping for better news soon.

Mary

 

[Rhodie Ranch]

Lupus is not a death sentence. It can be managed, and does go into remission too. Why do I know?

I was on the Bay Area Lupus Foundation Board for 7 years. All because my best friend was finally diagnosed with Lupus. In 1988. Took the Stanford Medical Dr's 2 years to determine what was wrong with her. Prednisone, and some other drugs for a few years, and she's been relatively healthy since then. A couple of flare ups, minor. She hasn't had any drugs for years.

If your self diagnosis is correct, there are now many more ways to manage this auto immune disease than in the 80's and 90's. It can be beaten back - with drugs, hard work, and dedication. And you are just the woman that can achieve that. This too, I know.

 

[thistlebloom]

We're here for you V! Sorry you're still struggling. But I think what Murph' had to say was encouraging.

Most of all, I think it's very important to be your own advocate when you see doctors, and this means being as educated as you can be about your symptoms. Insist that they give you all the options available and explain and reexplain anything you don't understand.

I have a friend with lupus, and the last time we corresponded she was doing quite well, being active and doing a lot of off roading with her family.
There's hope and there's help. Ask for it.
And trust me, I know what it is to be the Lone Ranger and try to go it alone....better to ask for help!

 

[vfem]

Well, I don't know much about the disease, honestly. I went to the doctor today and he's scheduled me to go get some tests done at a local lab in town next week. Lupus is a possibility, he actually agreed. However, when I got home I found out hubby got laid off again today.

Hopefully the insurance will last long enough for me to get these tests and get a 'maybe' on any of it before the insurance ends. I can't afford the cobra, so that isn't going to be an option.

I have no doubt whatever it is, I'll pull through it with flying colors. I just want to go into battle knowing what it is.

Thank you all so VERY much for your awesome words and kindness while I'm not myself. Its greatly appreciated!

 

[retiredwith4acres]

I have 2 friends with Lupus, one has almost no problems while the other has had major problems. Lupus is thought to be hereditary as well. Has anyone else in your family had the disease? Stress is something that has caused the friend that has had major problems to be worse. She even ended up quitting teaching to relieve the stress of work and it really helped. The other friend "appeared to me" to have had an outbreak recently when her husband attempted suicide. She had the red butterfly face that goes with the disease. I didn't ask, just assumed. But the others are right, there are good treatments now, just takes time to find the right one sometimes. Stick with your goal of finding the answer, don't give up. God Bless and prayers for you.