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Gardening with Rabbits
Garden Master
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This must be very discouraging to you Mary.
I'm sure you're doing as much research as you can get your hands on about this. One of my sisters had a serious illness starting when she was 8, and my mom discovered that she had to be her own spokesperson and do a lot of research for herself.
She discovered things that some of the doctors weren't aware of that made a difference.
I would encourage you to gather as much information as possible, if nothing else it will help you ask educated questions. It seems like a person has to ask a lot of questions to get answers that a doctor may not volunteer.
Hang in there Mary, you'll come out on the other side of this, and spring will be showing up soon.
I know what you mean and what happened with your sister was what I went through with DH. They made a lot of mistakes. The blood thinner really is what sped up his death. I told them something was wrong when his nose was bleeding, they said he was picking his nose. He was covered in bruises. I was afraid to stop the shots because he had a blood clot in his leg and who knew where else. Only after his brain was bleeding did they find out and they put him back on it after he had brain surgery again only half dose and he started to bleed again and came off forever. It was a combination with his cancer experimental drug. So hard to look for the information and fight about all this. I did call a naturopathic doctor and asked if I lost weight, exercised more, changed diet, would she help me come off the blood thinner and she said yes. I will ask this doctor when I go if he will. I will have to be on it for 6 months or more and if he does the blood work then fine, if not, I am in trouble. I want it drawn every 3 months. It took a year last time to go back to normal. I think my numbers are not as high this time and then go onto baby aspirin, but monitor my blood for me. If he will do that then I will be happy about it. I am starting to think it is my fault and sitting, but that hematologist said INFECTION and here I had a respiratory virus in December, very odd. I have not had a cold, virus or nothing in 15 years or more until the chickenpox.